Friday, July 20, 2012

Why we love Lisa

I haven't really written about my experience of getting a kidney transplant yet. I will soon. But my donor Lisa just posted to her blog here. She says she isn't a hero. But she is my HERO.

Wednesday, July 18, 2012

Love my girls

June Bug is just the sweetest little girl. She is so loving and thoughtful. This is after 1 1/2 transplant clinic. She did so good. The Girls packed up their own bags with toys and coloring books. Towards the end they got a little crazy; but all the dr.s were glad to see that their mommy was doing so well and was able to keep up with the craziness now. :)
Isn't is awesome I have two little car washing helpers. Yes the car isn't perfectly clean; but who cares?? They LOVE it.

Thursday, July 12, 2012

2012 Kidney Walk

So i am quite involved with this years kidney walk and couldn't be more excited. I have a team. Click HERE to JOIN my team. You can help me by walking the race or donating some money. My goal is $1000. I think I can do it with all your help. Let me know if you have any questions. Come support a good cause.

Singin in the rain

These girls LOVE their umbrellas! So when a summer rain storm rolled in of course we had to go play in it. Growing up in Florida we would get these summer down pours everyday. I LOVED them as a kid. It was warm outside and comforting. Well today my kids got to experience one of my favorite things. Singin in the rain.

Transplant time

I can't believe its been two weeks since my transplant. I feel AMAZING, which is crazy to me. I didn't realize how sick I was. You know I just went on with life for my kids and tried not to think to much about how crappy I felt. I am truly blessed. I feel like I got a second chance at life because of a friend that did a selfless act of kindness. I am so excited to move on from this experience with a new lease on life and a new attitude! xoxo

Tuesday, September 1, 2009

Junes 2 month pics

It has been for ever!

So I am a total slacker! Its taken a while to get use to the whole two kids thing and I have neglected our blog...sad! Here is Junes birth announcement with a couple pics of her one month photo shoot. She is getting so big! She just smiled for the first time and cooed on the 27th of August. June is also sleeping til about 5:30 every morning. LOVE IT! She is also very alert and loves to watch what you are doing.

Avery loves being a big sister and helps me out a lot! She is starting back up with dance on Thursday and is so excited. She is also talking in way big sentences now and is really wanting to learn how to read. At bedtime I read her a book then she has a turn after wards to look through it. Last night she said, "mom I can't read this" so I pointed at the words and had her repeat them back to me and she thought she was so cool. She also has flashcards she loves to go through and her shape book. She can read the numbers 1-5 also. This girl is quite the smarty pants.

Some funny things Avery is saying right now...

. I love you long time Daddy
. I'm going to break you down!
. Mom its OUR song! (when it's not my name by the ting tings played on the radio)
. I think I need something
. What the....
. Oh my gosh!
. I can't believe this!

Wednesday, July 8, 2009

1 week old

Today June is one week old! I can't believe how fast this last week has gone. June is doing very well. Today they stopped the gavage feedings! Hurray! She still has the tub in until they know how well she will handle having all normal feeds. She also took her first bottle today and chugged it down within minutes. She sure likes to eat! She is also still maintaining her temp today; but is still not in an open crib (they don't want to do too much at once.) Tonight her nurse will be taking some blood :( to check her belly ruben levels and make sure they are staying low. Hopefully she has gained or maintained her weight today so she can come home soon!

Tuesday, July 7, 2009

baby update

So tonight I am blogging from our "boarding" room from the hospital. I will be sleeping her until June can come home so I dont have to drive back and forth every couple of hours. June is doing so good! Today we are doing 2 out of 3 feedings. The third is a gavage feeding through the feeding tube. Every gavage feeding June gets way mad about an hour later because she wants more food and wants to nurse. So they have finally upped the amount she gets. She is getting tested on how well she can keep her temp on her own and then she gets to sleep in an open crib. Today she was able to get out from under the jaundice lights which she has been under the last few days. She also got her PIC line out. (it is a type of IV) So she is really close to be able to come home. Today is the trial run on feedings and keeping her temp. She will be released when she can handle all her feedings from me or a bottle. (she still hasn't tried a bottle yet) If she does well tonight on her feedings tomorrow they will up them. So lets cross our fingers she will do well and she can come home in a couple days!

Saturday, July 4, 2009

June update

Everyone this is crystal. still in the hospital but actually had a chance to sit down and update the blog! Having a nicu baby keeps you busy. well June is actually doing very well for being 5 weeks early. Avery was born at 33 weeks and I can't believe how much of a difference 2 weeks makes. She wont being coming home with me tomorrow; but is doing fine. She just has to be able to do certain things before she can come home. Today they took off the oxygen tube (the tube thingy that goes in your nose like in the movies.) Its a trial run but it has been off since five and she has being doing good. She is feeding well and they keep increasing her tube feedings by 2 cc's every feeding. I am also feeding her every six hours and she is doing amazing. June is still in a heated bed but it hardl;y has to adjust the temp at all. She will soon be moved to an open air crib and hopefully can keep her temp. As of now I think she will be able to come home soon even though they say preemies stay until their due date. We are also doing some foot stretches for her feet. they are turned inwards because she was cramped so much in my tummy. So every feeding she gets a foot massage. Lucky! Well hopefully that all makes sense since I am doped up on drugs at the moment. More to come!

ps thanks thompson fam for letting us borrow the labtop!!! Also for all the visits, phone calls, and comments. We appreciate all the love we have felt throughout this pregnancy! Oh and thank you thank you for all the help with Avery!